Showing posts with label transportation. Show all posts
Showing posts with label transportation. Show all posts

Sunday, July 13, 2014

Radiation Update: Over Halfway!


Once Mark and I found out about his treatment plan after the last operation, we did two things: we booked our return ticket to Tahiti with a tentative date of August 7th (getting back on Irie August 8th) and we called Hope Lodge - the American Cancer Society’s accommodation center – in Boston. The plane ride had to be scheduled, since August is a very busy time for (European) vacationers visiting French Polynesia, but our trip will depend on how Mark is doing. Calling Hope Lodge resulted in our names being put on a waiting list. The center offers only 40 rooms and there are MANY “out of the area” cancer patients receiving treatment in the high class institutes of Boston. Without solid plans (we are getting used to that), Mark started the first of his 19 radiation treatments on June 26th and is now over halfway.

The treatments

Every workday, we make our way to Dana Farber in Boston, where we usually don’t have to wait very long before Mark meets “his” machine and crew of technicians and receives his radiation therapy. I stay in the waiting room without him for no more than five minutes, while he gets zapped for about two of those. Then, we are done in the hospital. Once a week, a technician takes an X-ray of his chest, and on Tuesdays, we meet with Mark’s oncologist, Dr. Harris. Sometimes, the machine is delayed and once it has been “out of order”, causing a longer wait and Mark being directed to a different machine. The waiting room in the radiation department, albeit cold, is pretty comfortable and offers free drinks and snacks.

Mark’s side effects so far are relatively benign. He gets very tired every afternoon (“fatigue”), has a tingly sensation in his mouth, once in a while his chest hurts, and sometimes his throat feels a bit “coughy”, as if his asthma is acting up. The last few days, his chest area has turned red; it looks sun burned, and the surgery wound under his arm is painful because of a skin infection.

The transportation 

Thanks to his insurance plan, Mark can use a transportation service to bring him (us) to his daily appointments in Boston, 43 miles away from Newburyport. We have to book our trips three days in advance and two (!) hours before the appointment, we get picked up at home for the drive into the city. We scheduled Mark’s treatments around noon, to avoid rush hour traffic either way. We get to Dana Farber way too early and call the service when we are ready. Then, we are picked up directly, or after more waiting, and brought back home directly or after waiting for other customers and some detours. We appreciate the service, but it results in 4-6 hours of (uncomfortable and tiring) time loss, every day, for a five minute appointment in the hospital! The drivers of the contracting company (Nurse Care) are friendly, courteous, caring and respectful; the main female phone operator of the organization CATA on the other hand, has made our life harder and more stressful than it should be right now…  Let’s believe in fate! :-)


Carol and Stan have been great letting us use their car whenever they don’t need it, so that has become our preference of transport, almost half of the time. The drive into the city takes about an hour without traffic. We have a free parking spot reserved for radiation patients in the hospital garage, hop inside for a 1 minute walk to the right department and – usually – “quickly” follow the return procedure. This way – even though we spend two hours in the car which is quite tiring - we only lose about three hours a day dealing with this “cancer nuisance”.

The lodging

Halfway through Mark’s treatment, we were still staying in the separate room above Carol and Stan’s garage, going on two months of being there. It is not always easy for parents to have their adult children back into their close quarters, or for those middle aged kids to live with their parents again, but we have all adjusted well and so far everything has worked out splendidly. So, I hereby wish to thank Mark’s parents again for letting us stay with them and being their “live in help” as Carol says it so fondly, and for letting us borrow their car.

Then, a couple of days ago, we received the good news that there was a room available at Hope Lodge. Excitement is probably not the best word to describe it, but we felt some relief and joy to be able to live in Boston for these last ten days. It will make our lives so much easier and less annoying, especially not having to deal with the transportation vans (or phone lady) anymore and putting our “extra’ time to good use. We can walk to the hospital, a nearby park and a grocery store and the place is really well set up for our (and the other patients) needs. More about Hope Lodge in a next blog!

The entertainment

Two weeks ago, we had a wonderful weekend at Ryan and Denise’s place (another blog and more pictures to follow about this event; I guess I am a bit behind with my news here - life has been busy…). Lately, Mark has not been feeling great, so we haven’t been socializing or doing fun stuff except for 4th of July weekend. We had lunch at home with Mark’s nieces Jo and Suzy, we watched Belgium lose to Argentina in the World Cup, we spent a day with our friends Scott and Lisa at the lake and we went for a long walk to Plum Island that Sunday to get some exercise and see brother Tim’s family.

Now, our time here is winding down, but for some reason, we cannot think about what is next for us and our future quite yet… Other than ordering a lot of stuff for the boat!

The babies encouraging Belgium in the early stages

Lily watching Belgium defeat Russia

After Belgium's win against the USA

Jo and Suzy visiting for lunch on July 4th

Going for a boat ride on the lake (July 5th)

Ueli on Scott and Lisa's boat

Looks like fun... one day! :-)

Kids and adults tubing on the lake

Appropriate 4th July dessert!

Camp fire at dusk

Shooting off fireworks is legal in New Hampshire

And, they do a good job of it in July!

Passing the local airfield on our walk to Plum Island

Lonely, abandoned house along the walk

Beach across the street from Tim and Kristen's house

Petting Oliver, our sweet and hairy friend

Lily being cute with a hair brush

Lily and Cera
 

Friday, February 15, 2013

The Good and the Bad of Panama City


Mark and I have been in the country of Panama for over a year. Most of that time was spent in the San Blas islands, with occasional trips to the mainland and time there needed for projects and provisioning. Before driving Irie through the canal and anchoring her in the capital for almost three weeks, we had been to Panama City four times: once by camper in 2006, once after we helped our friends Axel and Liz through the big cut, once to visit them again and once after flying back from the States. Most of these “visits” were taken up by boat and grocery shopping in the nice and modern stores. Only once did we actually explore the old city, which is not too spectacular anyway. When you live on a sailboat it is surprising where your priorities lay!

People
I would not call the Panamanian people over friendly. One time, a local guy helped us and some friends out with his bus card, paying for the ride and not accepting the dollar back. Over the year, I’ve had a couple of men get up and offer me their seat in the bus. Usually, people don’t like to cue, but prefer pushing to get on the bus first, they don’t smile often nor greet tourists on the streets, they like loud music, crowding and tight clothing. It is common for them to throw garbage on the street, in nature or through the bus window – sides of streets are very littered, mostly outside of Panama City – even whether there are bins around. They are never in a rush or stressed, and mostly do what they please without seeing any harm in it. Once, I had a woman with a chock full cart cut the line in front of me at the grocery store check-out as if that was the most normal thing to do!

Businesses
When you own a boat on which things break all the time, run a business or have to stock-up on groceries and other supplies, you need to rely on local businesses. Panama, being a thoroughfare for many vessels on either side of the canal, has surprisingly few conveniences for boaters. On top of that, the careless attitude of the people makes things worse. Most people do not seem to enjoy their job or their customers. You get used to the female cashiers playing with their phone or their nails, hardly looking up to help you out. A lot of patience is required and endurance to try to get what you want or be helped properly and satisfyingly. That being said, you can get a lot of things done over a long period of time and frustration, mainly in the city. This all sounds a bit harsh, but many cruisers share our opinion and experiences. Over the time we have spent in this country, we had two really positive experiences (both in PC) and would recommend both businesses. The first is Roger (Rogelio), the taxi driver, who is VERY reliable, friendly, helpful and responsible. The other is the Balboa Dental Clinic, where the employees are extremely friendly, helpful and knowledgeable. English is spoken by all.

Stores
Big, western-style grocery stores, small Chinese run shops, marine stores, hardware centers, shopping malls, metal shops, specialty stores, gourmet markets, department stores … you find it all in Panama City. There is more available here than anywhere else in the country and that in itself is a breath of fresh air. Still, particular items are unavailable, a pain to source or very expensive, so when Mark returned from the US, his suitcases were chock full of boat parts and repair materials.
 
Transportation
Panama City is a big place, with many stores. Visiting boats are located at the Amador, which is a causeway, pretty far away from everything. The way to get things done in the easiest fashion is by taxi. Fares do add up quickly, especially since the return trip – with all the groceries – is more expensive. The cheapest way is to take a $1 taxi (the minority of cabs is interested in charging only $1 per person a ride, especially if you’re a gringo) to Cinco de Mayo, one of the bus congregations, where you can take a chicken bus or Metro bus close to your destination. You need to have a good idea about the layout of the city and the unadvertised routes of the buses. There are no bus schedules. The Metro buses are comfortable, relatively uncrowded and airconditioned. You do need to buy a $2 card at one of the vending locations and “put” money on it. Each person scans the (same) Metro card when boarding the bus. Rides are 25 cents everywhere in the city. On the way back, you can try to follow this process in reverse, or take a cab back to the Amador, for which you will have to bargain big time. It is very important to agree on a price before taking off!

Traveling (partway) by bus is very time consuming and most cruisers prefer to use cabs. Having to run around the busy city like this every day, hailing cabs, asking prices, knowing the drivers overcharge, bargaining them down, trying again with another cab, albeit being successful in the end, gets very tiring. Some Spanish knowledge is required. Don’t expect the cab driver to give you a hand with all the groceries. Traffic in the city can be horrendous as well, especially around rush hour. Once, I spent three hours on a bus to reach my destination 15 minutes away. That was after the half an hour taxi ride to take the bus. I have to admit I took this bus at the wrong road and went the opposite way…

Anchorages
Mainland Panama does not have great anchorages and Panama City is the worst. Cruisers can pick up a mooring (and pay) at the Balboa Yacht Club, where a lancha is needed to get to shore (patience is required, freedom to go whenever is gone) and where the close proximity to the canal means rolling around at anchor. Or, they can anchor at La Playita anchorage, where the big wake of passing ships, ferries and pilot boats create the same uncomfortable moments at anchor, where stuff flies all over the place and the boat is not at rest, ever. There is a good dinghy dock, but you have to pay $38 a week (per boat) to go ashore. Garbage disposal is free, but for fresh water you pay 5 cents a gallon. Diesel is the same price as in the gas stations, but much more convenient to get. The third option is the Las Brisas anchorage, which only gets choppy and uncomfortable with strong winds from the north/east or when the current differs from the wind direction. It is less busy and less noisy, but the dinghy dock is very inconvenient, tricky and dangerous. Being there is free and you have a nice view over the city. You also get to enjoy the city’s run-off. And then there are the extremely expensive marinas as the only other alternative… Each of these places gets showered with dirt from the big city and the boat becomes truly gross and dirty, inside and out.

Weather
Most of the days have been warm and enjoyable, with blue skies and a little breeze. The rain has stopped falling for many months to come, so we have to buy and lug water again. The nights have been cool, sometimes even chilly, and in the city, we slept with a comforter and took a sweater when going out. In the mornings, we used the dew to “clean” our decks. The water of the bay was frigid and taking showers less than pleasurable. Condensation took place in the hulls – mostly the underwater part - and we found a decent amount of water in the bilges. Temperatures seem to be rising again now. The phenomenon of “red tide” has been prominent everywhere. The water turns red with big particles floating about. Not ideal to take a dip. We would love to get a little bit more (and consistent) wind.

Wildlife
In the past, I have wanted to see sloths in the wild and I have been looking and searching for them on many occasions. Big was my surprise and excitement to see two of them in the trees at the parking lot of La Playita! They live in that neck of the woods and around 16:30 – 17:00 you can spot them eating the fruits off branches. There are also a lot of birds and fish around, now that we are in the Pacific.

Social Times
Thursday means “pizza night” on the Amador, in the Eskinita pizzeria. Lots of cruisers show up, a long table is formed and good food and fun times are had. Books are swapped and goods are sold. One day, I joined Mark and Marian (SV Zenna) to Taboga to observe the Festival of the Sea celebrations and explore the cute island a bit. Mark and I also met up with our Austrian friends Christian and Birgit (SV Pitufa) a few times and said our goodbyes to Britta and Dave from SV Anam Cara. As they are getting ready for a new “twist” in their lives, we are getting ready for our own, new kind of adventure as well.